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White Med
The White Sheep: Living in an ADD Family
For as long as I can remember, I've had to deal with turbo-charged chaos. This includes everything from showing up to events on the wrong day to rescheduling botched vacations, and from not sleeping well at night to being late for church literally every single Sunday for the past 31 years. In addition to these regular occurrences, there are the not as frequent, yet just as frustrating, instances such as when my AOL account was rendered inactive due to nonpayment of fees right in the middle of conducting research for my term paper or the year I didn't get my income tax return check cashed in time because it was "put up for safe keeping" under the serving platter in the china cabinet and then forgotten about.
In an effort to learn more about the hectic nature of this crazy thing known as "my life," I decided to spend a Saturday at a conference for children and adults with Attention Deficit Hyperactivity Disorder (CHADD regional conference). Having attended conferences before for my job, I thought that I pretty much knew what to expect, but as soon as I walked through the hotel doors, I knew that this one would be different. There was an incredibly long line of people at the registration desk, and those 60 people were coherently involved in about 72 various conversations. The woman in front of me was talking about degenerative eye diseases while the man in back of us described a recent visit with his granddaughter. Within a few moments, the conversation between both of these strangers naturally evolved to the color of Angelina Jolie's baby's eyes. Huh? It was at that point, that I knew for sure that I was at the right place.
Once inside the meeting room, I took a seat and waited anxiously for the first speaker to begin. I wanted him to help me understand AD/HD and how to cope with it. Before he could get started, my neighbor passed me a clipboard with a sign-in sheet titled, "Atlanta Area Women with ADD." I briefly examined the page which had space for my name, phone number and email address before passing it along to the next person. I could see out of the corner of my eye that the woman who had passed it to me was giving me a bit of a strange look. She politely asked, "Oh, you didn't sign it because you don't live in Atlanta?" I responded, "Actually, I do live here," I responded. "I didn't sign it because I don't have ADD." It was probably my paranoid imagination, but at that moment, it seemed like the whole row got quiet, so I quickly added, "I mean, not that there's anything wrong with having it, but I just don't."
A bit confused, are you? Well, I wasn't lying. I don't have AD/HD, but it was imperative for me to glean all that I could from this conference because the rest of my AD/HD-diagnosed family has been ‘driving ME to distraction.' Let me explain...I showed up for events on the wrong day, or missed important events altogether, because my mom would lose the invitations and try to rely on her memory to come up with the date. I never slept well at night because my brother and sister were up until dawn laughing and talking under the auspice of organizing the basement, and I don't even know what the first 20 minutes of the church service entails because my teenage nephews are literally incapable of putting on both socks and both shoes in less than 40 minutes.
That time that my AOL account was canceled during crunch week in grad school? That was because my mom misplaced, forgot, lost (choose one) the check that my dad gave her to pay the Visa bill - the same Visa that our family AOL account automatically gets charged to every month. And lest we forget, my mom gave me my income tax return check from 2001 when I was home for Christmas in 2006. She has the uncanny habit of doing such a great job of putting things up for me that she can't even find them until years later.
My mom, sister, brother, niece, three nephews and a host of extended family have all been diagnosed with AD/HD. That leaves me and my dad to fend for ourselves, and since he was usually (conveniently) at work while I was growing up, it was typically just me. The lone "normal" one...the white sheep of the family. So while I recognize the gifts that my AD/HD family offers (creativity, keen sense of humor, and generosity to name a few), I need for someone to recognize the impact that their less desirable characteristics have had, and continue to have, on my life.
It's hard for me to even write those words because they make me feel a twinge of selfishness, but as the youngest child in the family, I feel like I missed out on all that comes along with being the baby because so much time and effort was spent on my family just trying to make it until tomorrow. The frustration that they felt when deadlines began to approach at work and school is the same thing that I felt when they showed up to my ballet recital after my part was already over. The anxiety that rumbles inside them when it takes four hours to wash the dishes parallels the feeling that I get when they leave my house a complete and total disaster zone after a 15 minute visit.
As an AD/HD educational consultant who has appeared on a talk show, been featured in books, quoted in numerous articles and included in an oft-watched educational video, my mom is a crusader for the disorder that went undiagnosed for most of her life. Through her, my siblings and their children have benefited from early detection and sound guidance throughout their treatments. They have been coached on writing lists, developing routines, and playing up their strengths. They know who to go to when they need to talk and are able to immediately recognize when their meds need adjusting. All of this they've learned and accomplished, yet they still struggle with the one thing that all of the books and conferences in the world can't teach them - how to include me, the white sheep, in their inner circle.
About the Author
Amber O'Neal is a fitness & nutrition expert and owner of Cafe Physique. Her business specializes in nutrition & wellness coaching, personal training, and yoga/pilates training. Cafe Physique is headquartered in Atlanta and offers coaching services nationally via phone and email. Visit www.CafePhysique.com for more information.
Does anyone know anything on meds that help boost the white blood count in a patient that has lukemia?
My mom was recently sent to I.C.U. after a chemo treatment & in the past, the Doctor has always given her shots after chemo called Nupregen to help boost her white blood count. Since she has been in I.C.U., the doctor said he quit giving her this shot, because it was making more Lukemia cells. how could this be??? She has now been left with no meds to help fight infection and to help boost her white blood count. Does anyone know anything about this?? I feel like the Doctor has given up... Does anyone know if there is an alternative medicine used in Lukemia/Cancer patients that help boost the white blood count??? I feel so helpless.. The Doctors give us no hope. Thank you..
the drug Procrit is supposed to increase the WBC of patients receiving chemo (oops, sorry, procrit increases RBCs). Has the possibility of a bone marrow transplant been explored? This can often be very beneficial for leukemia patients.
Here, I found this article.
Arsenic-Based Therapy Benefits Leukemia Patients - Brief Article
FDA Consumer, Jan, 2001
A new arsenic-based drug may benefit some leukemia patients for whom standard therapy has failed. The Food and Drug Administration approved Trisenox (arsenic trioxide) to treat patients with acute promyelocytic leukemia (APL) who have not responded to, or have relapsed after the use of, trans-retinoic acid and anthracyline-based chemotherapy, which is considered the first-line therapy. Trisenox was approved for marketing only three years after the study of the drug first started in the United States--the fastest development of any cancer therapy.
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APL is a cancer in which abnormal white blood cells in bone marrow and blood accumulate quickly, resulting in anemia (a reduction in red blood cells), susceptibility to infections, and bleeding. About 1,500 new cases of APL are diagnosed each year and an estimated 400 of those patients will not respond to or will relapse from first-line therapy.
Trisenox offers a new alternative. Arsenic trioxide changes immature cancerous white blood cells into normal white blood cells. The result can be a sudden increase in the white blood cell count. In a multi-center clinical study of 40 patients who received arsenic trioxide infusions, 28 patients (70 percent) had a remission of their leukemia.
In some cases, the increase in the white blood cell count is accompanied by the "APL differentiation syndrome," a potentially fatal condition characterized by inflammation and fluid accumulation, particularly in the lining of the heart and lungs. The usual treatment is to temporarily stop the leukemia therapy and treat with high-dose steroids. This syndrome appeared in eight of the 40 patients (20 percent), but no cases were severe enough to require interrupting the arsenic trioxide therapy.
Also, try this website.
http://www.mdanderson.org/patients_public/clinical_trials/
Good Luck!
c-ya
Jimmy White massé shot - coolest snooker shot of all time